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Pope Francis: ‘Jesus saves us from the darkness’

Vatican City, May 6, 2020 / 07:00 am (CNA).- Pope Francis said Wednesday that Christ’s light illuminates the darkness of sin in our world and in ourselves.

“It is the mission of Jesus to bring light. And the mission of the apostles is to bring the light of Jesus,” Pope Francis said in his morning Mass homily on May 6.

“The Lord saves us from the darkness that we have inside, from the darkness of everyday life, of social life, of political life, of national, international life,” he said.

Speaking from the chapel of his Vatican City residence, Casa Santa Marta, Pope Francis quoted chapter 12 of the Gospel of John: “I came into the world as light, so that everyone who believes in me might not remain in darkness.”

The pope said that “the drama is that the light of Jesus has been rejected” by many who are blinded by sin. 

“Sin blinds us and we cannot tolerate light,” he said. “It is not easy to live in the light. The light makes us see so many bad things inside us that we do not want to see: the vices, the sins.”

He continued: “We think of our pride. We think of our worldly spirit. These things blind us. They distance us from the light of Jesus.”

Conversion is an experience of moving from this darkness of the “slavery” of sin to the light of Christ, the pope said.

“Paul had this experience of the passage from darkness to light, when the Lord met him on the road to Damascus. He was blinded. Blind. The light of the Lord blinded him. And then, after a few days, with baptism, the light was restored,” he said. 

“He had this experience of the passage from the darkness, in which he was, to the light. It is also our passage, which we sacramentally received in Baptism … This is why in the baptism liturgy we receive a lit candle … because the child is illuminated,” he added.

Pope Francis said that the Lord asks us to “have the courage to see our darkness so that the light of the Lord may come in and save us.” He added that there is no reason to be afraid of the light of Jesus because he is gentle and good, and “he came to save us.”

“And this will be the struggle of Jesus. He continues to illuminate, to bring the light that shows things as they are,” the pope said. 

“He shows freedom. He shows the truth. He shows the way to go with the light of Jesus.”




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Italian teen who died in 2009 declared ‘venerable’ by Pope Francis

Vatican City, May 6, 2020 / 09:30 am (CNA).- Pope Francis Wednesday advanced the sainthood causes of five men and women, including an Italian teenager who died of a brain tumor in 2009, declaring them “venerable.”

After a May 5 meeting with Cardinal Angelo Becciu, the prefect of the Congregation for the Causes of Saints, the pope approved the heroic virtue of Italian priests Francesco Caruso (1879-1951) and Carmelo De Palma (1876-1961), as well as the Spanish Redemptorist priest Francisco Barrecheguren Montagut (1881-1957).

Before becoming a priest, Barrecheguren Montagut was married (he was later widowed) and had a daughter, Maria de la Concepción Barrecheguren García (1905-1927), who was also declared venerable by the pope May 6.

The fifth sainthood cause to move a step toward canonization was that of Italian teenager Matteo Farina, who lived from 1990 to 2009. 

Farina grew up in a strong Christian family in the southern Italian town of Brindisi. He was very close to his sister, Erika.

The parish where he received the sacraments was under the care of Capuchin friars, from whom he gained a devotion to St. Francis and St. Padre Pio. 

The postulator of Farina’s cause for sainthood said that from a young age Farina had the desire to learn new things, always undertaking his activities with diligence, whether it was school or sports or his passion for music.

Starting at eight years old, he would receive the sacrament of reconciliation often. He was also devoted to the Word of God. At nine years old, he read the entire Gospel of St. Matthew as a Lenten practice. Farina also prayed the rosary every day.

When he was nine years old, he had a dream in which he heard St. Padre Pio tell him that if he understood that “who is without sin is happy,” he must help others to understand this, “so that we can all go together, happy, to the kingdom of heaven.”

From that point onward, Farina felt a strong desire to evangelize, especially among his peers, which he did politely and without presumption.

He once wrote about this desire, saying “I hope to succeed in my mission to ‘infiltrate’ among young people, speaking to them about God (illuminated by God himself); I observe those around me, to enter among them as silent as a virus and infect them with an incurable disease, Love!”

In September 2003, a month before his 13th birthday, Farina began to have symptoms of what would later be diagnosed as a brain tumor. As he was undergoing medical tests, he began to keep a journal. He called the experience of the bad headaches and pain “one of those adventures that change your life and that of others. It helps you to be stronger and to grow, above all in faith.”

Over the next six years, Farina would experience several brain operations and undergo chemotherapy and other treatments for the tumor.

His love for Mary strengthened during this time and he consecrated himself to the Immaculate Heart of Mary.

In between hospitalizations, he continued to live the ordinary life of a teenager: he attended school, hung out with his friends, formed a band, and fell in love with a girl. 

He later called the chaste relationship he had with Serena during his last two years of life “the most beautiful gift" the Lord could give him.

When he was 15, he reflected on friendship, saying “I would like to be able to integrate with my peers without being forced to imitate them in mistakes. I would like to feel more involved in the group, without having to renounce my Christian principles. It’s difficult. Difficult but not impossible.”

Eventually, the teenager’s condition worsened and after a third surgery he became paralyzed in his left arm and leg. He would often repeat that “we must live every day as if it were the last, but not in the sadness of death, but rather in the joy of being ready to meet the Lord!”

Farina died surrounded by his friends and family on April 24, 2009. 

Francesca Consolini, the postulator of Farina’s cause, wrote on a website dedicated to the young venerable that in him emerged “a deep inner commitment oriented toward purifying his heart from every sin” and he experienced this spirituality “not with heaviness, effort or pessimism; indeed, from his words there emerges constant trust in God, a tenacious, determined and serene gaze turned to the future...”

Farina often thought about the faith and the “difficulty of going against the current.” Concerned about a lack of good faith education for young people, he undertook this task among his own peers. 

He once wrote in his journal: “When you feel that you can’t do it, when the world falls on you, when every choice is a critical decision, when every action is a failure ... and you would like to throw everything away, when intense work reduces you to the limit of strength ... take time to take care of your soul, love God with your whole being and reflect his love for others.”




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Swiss Guards postpone swearing-in of new recruits due to coronavirus

Vatican City, May 6, 2020 / 11:47 am (CNA).- The annual swearing-in of new Swiss Guards, which would usually take place May 6, was moved to Oct. 4 because of the coronavirus.

Instead, the Pontifical Swiss Guards marked Wednesday’s anniversary of the Sack of Rome with private, more muted celebrations, lacking the presence of guests and streamed over the internet.

The Swiss Guards marked the 493rd anniversary of the May 6, 1527 battle with Mass in the church of Santa Maria of the Pieta in the Teutonic College, followed by the “laying of the wreath,” in the Square of the Roman Protomartyrs in Vatican City.

Afterward, the commander of the Swiss Guards conferred papal honorifics on 15 guards.

After Mass, all but the newest members of the world’s smallest-but-oldest standing army marched to Square of the Roman Protomartyrs, so-named for being the site of the death of several early Christian martyrs, including St. Peter.

The Commander of the Swiss Guards, Christoph Graf, gave a speech at the ceremony in which he recounted the story of the 1527 battle known as the Sack of Rome, when 147 guards lost their lives defending Pope Clement VII from mutinous troops of the Holy Roman Empire.

During the battle, the pope was able to escape from the Vatican to Castel Sant’Angelo via a secret passageway connecting the two. It is the most significant and deadly event in the history of the Swiss Guards.

After the speech, a large wreath was placed in the square in commemoration of the guards who died during the battle.

The anniversary is usually marked by a whole weekend of events attended by representatives of the Swiss army, Swiss government, and Swiss bishops’ conference. Family and friends of the guards, and former guards who return for a visit, also participate.

In past years, the festivities have also included a concert and an audience with Pope Francis.

The main celebrant of the May 6 Mass was the assessor of the Secretariat of State, Msgr. Luigi Roberto Cona. In his homily, Cona said he wishes the guards may “truly experience Christ.”

“May you encounter a Church that is not only an institution, an institution to be defended, to be protected, which you have wisely done for 500 years now, but also a community, a believing community which has met the living and true Christ, which loves him, and intends to serve him in everyday life,” he said.

“Because every day we too, in imitation of the first Christian martyrs – and your brother guards who offered themselves at that very important moment in 1527 – we too, without the heroism of those, can offer ourselves day after day in the services we are called to perform.”




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Pope Francis: ‘Pass down the history of our salvation’

Vatican City, May 7, 2020 / 08:00 am (CNA).- It is important for Catholics to remember the whole of salvation history, and our belonging to the people of God’s covenant with Abraham, Pope Francis said at Mass Thursday.

During daily Mass in the chapel of his Vatican residence, the Casa Santa Marta, Pope Francis reflected on an aspect of the day’s first reading from the Acts of the Apostles, when St. Paul is invited to speak in the synagogue in Antioch.

Instead of speaking directly about Jesus, the apostle begins by telling the history of salvation, the pope noted May 7.

“What is behind Jesus? There is a story. A story of grace, a story of election, a story of promise. The Lord chose Abraham and went with his people,” he said.

“There is a story of God with his people. And for this reason, when Paul is asked to explain the reason for faith in Jesus Christ, he does not start from Jesus Christ: he begins from history.”

The pope pointed to the first part of the entrance antiphon recited at the start of that Mass: “O God, when you went forth before your people, marching with them and living among them...”

He urged Catholics to remember to “pass down the history of our salvation,” and to ask the Lord to help them have the awareness of being children of Abraham, as the Virgin Mary says in the Magnificat and Zechariah in his Benedictus, canticles which are recited or sung in the Liturgy of the Hours.

Christianity, the pope said, is belonging to the people with whom the Lord made his covenant.

Pope Francis also spoke in his homily about what he thinks Christianity is not.

“Christianity is a doctrine, yes, but not only,” he stated. “Christianity is not just an ethic. Yes, indeed, it has moral principles,” but it is not just having an ethical viewpoint.

Francis went on to say that Christianity is also more than an exclusionary vision of an “‘elite’ of people chosen for the truth.” He criticized when this attitude comes into the Church as a belief in the damnation of others.

It is good to be a moral people, he said, but “Christianity is belonging to a people, to a people freely chosen by God.”

“If we do not have this awareness of belonging to a people we would be ideological Christians,” he said.

The pope explained that this is why, in order to speak about Jesus, St. Paul starts by explaining “from the beginning, from belonging to a people.”

He warned that when Christians lose the sense of belonging to the people of God’s covenant, they often fall into “partialities,” whether dogmatic, moral, or elitist.

Francis called this “the most dangerous deviation” Christians can fall into today.

Before Mass, Pope Francis noted that he had received a letter from a group of artists, thanking him for remembering them in prayer in April.

He added that he “would like to ask the Lord to bless them because artists make us understand what beauty is and without beauty the Gospel cannot be understood.”

“Let’s pray for artists again,” he urged.

After Mass, the pope concluded the livestream with Eucharistic adoration, benediction, and the Marian antiphon “Regina coeli.”




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Pope Francis: 'Allow yourself to be consoled by Jesus'

Vatican City, May 8, 2020 / 04:00 am (CNA).- We must learn to let ourselves be consoled by Jesus when we are suffering, Pope Francis said at his morning Mass Friday.

In his homily in the chapel at Casa Santa Marta, May 8, the pope noted it was difficult to accept Christ’s consolation in times of distress. 

Reflecting on the day's Gospel reading, John 14:1-6, which records Jesus’ words to his disciples at the Last Supper, the pope said the Lord recognizes their sadness and seeks to console them.

"It is not easy to allow ourselves to be consoled by the Lord,” he said. “Many times, in bad moments, we are angry with the Lord and we do not let Him come and speak to us like this, with this sweetness, with this closeness, with this meekness, with this truth and with this hope.”

He noted that Jesus’ way of consoling was quite different to telegrams of condolence, which are too formal to console anyone. 

“In this passage of the Gospel we see that the Lord consoles us always in closeness, with the truth and in hope,” he said. “These are the three marks of the Lord's consolation.”

The pope observed that Jesus is always close to us in times of sorrow.

“The Lord consoles in closeness. And He does not use empty words, on the contrary: He prefers silence,” he said, according to a transcript by Vatican News.

He added that Jesus does not offer false comfort:  

“Jesus is true. He doesn't say formal things that are lies: ‘No, don’t worry, everything will pass, nothing will happen, it will pass, things will pass…’ No, it won’t. He is telling the truth. He doesn’t hide the truth.”

The pope explained that Jesus’ consolation always brings hope. 

He said: “He will come and take us by the hand and carry us. He does not say: ‘No, you will not suffer: it is nothing…’ No. He says the truth: ‘I am close to you, this is the truth: it is a bad time, of danger, of death. But do not let your heart be troubled, remain in that peace, that peace which is the basis of all consolation, because I will come and by the hand I will take you where I will be’.”

The pope concluded: “We ask for the grace to learn to let ourselves be consoled by the Lord. The Lord's consolation is true, not deceiving. It is not anesthesia, no. But it is near, it is true and it opens the doors of hope to us.”

After Mass, the pope presided at adoration and benediction of the Blessed Sacrament, before leading those watching via livestream in an act of spiritual communion.

The congregation then sang the Easter Marian antiphon “Regina caeli.”

At the start of Mass, the pope noted that World Red Cross and Red Crescent Day falls on May 8, the anniversary of the birth of Henry Dunant, founder of the International Committee of the Red Cross.  

Pope Francis said: “We pray for the people who work in these worthy institutions: may the Lord bless their work which does so much good.”




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Pope Francis: the devil seeks to destroy the Church through envy

Vatican City, May 9, 2020 / 04:00 am (CNA).- The devil uses envy to try to thwart the proclamation of the Gospel, Pope Francis said at his morning Mass Saturday.

In his homily in the chapel at Casa Santa Marta, May 9, the pope reflected on the day’s first reading, Acts 13:44-52, in which the Jewish community at Antioch rejects St. Paul’s preaching about Jesus. 

He said: “On the one hand there is the Lord, there is the Holy Spirit who makes the Church grow, and it grows ever more: this is true. But on the other hand, there is the evil spirit that seeks to destroy the Church.” 

After citing other examples in the Acts of the Apostles where the apostles faced rejection, the pope asked: “And what is the devil's instrument to destroy the Gospel proclamation? Envy. The Book of Wisdom [2:24] says it clearly: ‘Through the devil's envy sin has entered the world’ -- envy, jealousy, here. Always this bitter, bitter feeling.” 

Reflecting on this enduring struggle, Pope Francis quoted St. Augustine of Hippo, who wrote in “The City of God” that “the Church progresses on her pilgrimage amidst this world's persecutions and God's consolations.”

“A Church that has no difficulty lacks something,” he said. “The devil is too calm. And if the devil is calm, things are not going well. Always the difficulty, the temptation, the struggle... the jealousy that destroys. The Holy Spirit creates the harmony of the Church, and the evil spirit destroys. Until today.” 

The pope noted that in the first reading the community at Antioch turned the leading women and men of the city against the apostles. He observed that temporal powers are often an instrument through which envy is stirred up against Christians. 

He said: “Let us be careful with the preaching of the Gospel: never to fall, to put our trust in temporal powers and money. The trust of Christians is Jesus Christ and the Holy Spirit that He sent, and it is precisely the Holy Spirit who is the leaven, it is the strength that makes the Church grow.” 

“Yes, the Church goes ahead, in peace, with resignation, joyful: between ‘the consolations of God and the persecutions of the world.’”

The pope led those watching via livestream in an act of spiritual communion, composed by St. Alphonsus Liguori, founder of the Redemptorists.

He prayed: “My Jesus, I believe that you are present in the most Blessed Sacrament. I love You above all things and I desire to receive You into my soul. Since I cannot now receive You sacramentally, come at least spiritually into my heart. I embrace You as if You were already there, and unite myself wholly to You. Never permit me to be separated from You.”

The pope ended the celebration with adoration and benediction of the Blessed Sacrament. The congregation then sang the Easter Marian antiphon “Regina caeli.”

At the start of Mass, the pope noted that May 9 is the feast day of St. Louise de Marillac, the French founder of the Daughters of Charity. Her feast normally falls on March 15 but was transferred this year because it fell on a Sunday in Lent. A painting of the 17th-century saint was brought to the pope’s chapel to mark the occasion. 

The Daughters of Charity belong to the Vincentian family. Vincentian nuns live at the Casa Santa Marta, the pope’s residence, and run a pediatric dispensary at the Vatican.

At the start of Mass, the pope said: “Today is the commemoration of St. Louise de Marillac: let us pray for the Vincentian sisters who have run this clinic, this hospital, for almost 100 years and have worked here, in Santa Marta, for this hospital. May the Lord bless the sisters.”




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Service Use Classes Among School-aged Children From the Autism Treatment Network Registry

BACKGROUND AND OBJECTIVES:

Use of specific services may help to optimize health for children with autism spectrum disorder (ASD); however, little is known about their service use patterns. We aimed to (1) define service use groups and (2) determine associations of sociodemographic, developmental, behavioral, and health characteristics with service use groups among school-aged children with ASD.

METHODS:

We analyzed cross-sectional data on 1378 children aged 6 to 18 years with an ASD diagnosis from the Autism Speaks Autism Treatment Network registry for 2008–2015, which included 16 US sites and 2 Canadian sites. Thirteen service use indicators spanning behavioral and medical treatments (eg, developmental therapy, psychotropic medications, and special diets) were examined. Latent class analysis was used to identify groups of children with similar service use patterns.

RESULTS:

By using latent class analysis, school-aged children with ASD were placed into 4 service use classes: limited services (12.0%), multimodal services (36.4%), predominantly educational and/or behavioral services (42.6%), or predominantly special diets and/or natural products (9.0%). Multivariable analysis results revealed that compared with children in the educational and/or behavioral services class, those in the multimodal services class had greater ASD severity and more externalizing behavior problems, those in the limited services class were older and had less ASD severity, and those in the special diets and/or natural products class had higher income and poorer quality of life.

CONCLUSIONS:

In this study, we identified 4 service use groups among school-aged children with ASD that may be related to certain sociodemographic, developmental, behavioral, and health characteristics. Study findings may be used to better support providers and families in decision-making about ASD services.




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Weight Management in Primary Care for Children With Autism: Expert Recommendations

Research suggests that the prevalence of obesity in children with autism spectrum disorder (ASD) is higher than in typically developing children. The US Preventive Services Task Force and the American Academy of Pediatrics (AAP) have endorsed screening children for overweight and obesity as part of the standard of care for physicians. However, the pediatric provider community has been inadequately prepared to address this issue in children with ASD. The Healthy Weight Research Network, a national research network of pediatric obesity and autism experts funded by the US Health Resources and Service Administration Maternal and Child Health Bureau, developed recommendations for managing overweight and obesity in children with ASD, which include adaptations to the AAP’s 2007 guidance. These recommendations were developed from extant scientific evidence in children with ASD, and when evidence was unavailable, consensus was established on the basis of clinical experience. It should be noted that these recommendations do not reflect official AAP policy. Many of the AAP recommendations remain appropriate for primary care practitioners to implement with their patients with ASD; however, the significant challenges experienced by this population in both dietary and physical activity domains, as well as the stress experienced by their families, require adaptations and modifications for both preventive and intervention efforts. These recommendations can assist pediatric providers in providing tailored guidance on weight management to children with ASD and their families.




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Factors Associated With Seizure Onset in Children With Autism Spectrum Disorder

BACKGROUND AND OBJECTIVES:

Children with autism spectrum disorder (ASD) have a higher prevalence of epilepsy compared with general populations. In this pilot study, we prospectively identified baseline risk factors for the development of seizures in individuals with ASD and also identified characteristics sensitive to seizure onset up to 6 years after enrollment in the Autism Speaks Autism Treatment Network.

METHODS:

Children with ASD and no history of seizures at baseline who either experienced onset of seizures after enrollment in the Autism Treatment Network or remained seizure free were included in the analysis.

RESULTS:

Among 472 qualifying children, 22 (4.7%) experienced onset of seizures after enrollment. Individuals who developed seizures after enrollment exhibited lower scores at baseline on all domains of the Vineland Adaptive Behavior Scales, greater hyperactivity on the Aberrant Behavior Checklist (25.4 ± 11.8 vs 19.2 ± 11.1; P = .018), and lower physical quality of life scores on the Pediatric Quality of Life Inventory (60.1 ± 24.2 vs 76.0 ± 18.2; P < .001). Comparing change in scores from entry to call-back, adjusting for age, sex, length of follow-up, and baseline Vineland II composite score, individuals who developed seizures experienced declines in daily living skills (–8.38; 95% confidence interval –14.50 to –2.50; P = .005). Adjusting for baseline age, sex, and length of follow-up, baseline Vineland II composite score was predictive of seizure development (risk ratio = 0.95 per unit Vineland II composite score, 95% confidence interval 0.92 to 0.99; P = .007).

CONCLUSIONS:

Individuals with ASD at risk for seizures exhibited changes in adaptive functioning and behavior.




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Agitation in Patients With Autism Spectrum Disorder Admitted to Inpatient Pediatric Medical Units

OBJECTIVES:

Our goals for this study were to characterize the frequency of agitation in patients with autism spectrum disorder (ASD) admitted to an inpatient pediatric medical unit and to identify risk factors associated with agitation.

METHODS:

Through a retrospective chart review, we identified every patient between 8 and 19 years of age with a documented ASD diagnosis admitted to a pediatric medical unit over a 5-year period. We performed a detailed review of each admission, with a focus on factors hypothesized to be correlated with risk of agitation.

RESULTS:

One or more episode of agitation occurred during 37 (12.4%) of the 299 admissions and for 31 (18.5%) of the 168 patients who met inclusion criteria. History of agitation (risk ratio 21.9 [95% confidence interval 5.4–88.3] for history of severe agitation; P < .001) and documented sensory sensitivities (risk ratio 2.3 [95% confidence interval 1.3–3.8]; P < .001) were associated with a significantly increased risk of agitation during admission. History of past psychiatric admissions was associated with increased risk before, but not after, controlling for history of agitation and sensory sensitivities. Psychiatric comorbidity, intellectual disability, acute pain on admission, number of preadmission psychotropic medications, Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition ASD diagnosis, age, and sex were not significantly associated with increased risk.

CONCLUSIONS:

Hospitalization can be challenging for patients with ASD. A subset of these patients experience episodes of agitation during admission, posing a safety risk to patients and staff. Characterizing risk factors associated with these behaviors may allow for identification of at-risk patients and guide targeted intervention to prevent negative behavioral outcomes.




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Therapy and Psychotropic Medication Use in Young Children With Autism Spectrum Disorder

BACKGROUND AND OBJECTIVES:

Guidelines suggest young children with autism spectrum disorder (ASD) receive intensive nonpharmacologic interventions. Additionally, associated symptoms may be treated with psychotropic medications. Actual intervention use by young children has not been well characterized. Our aim in this study was to describe interventions received by young children (3–6 years old) with ASD. The association with sociodemographic factors was also explored.

METHODS:

Data were analyzed from the Autism Speaks Autism Treatment Network (AS-ATN), a research registry of children with ASD from 17 sites in the United States and Canada. AS-ATN participants receive a diagnostic evaluation and treatment recommendations. Parents report intervention use at follow-up visits. At follow-up, 805 participants had data available about therapies received, and 613 had data available about medications received.

RESULTS:

The median total hours per week of therapy was 5.5 hours (interquartile range 2.0–15.0), and only 33.4% of participants were reported to be getting behaviorally based therapies. A univariate analysis and a multiple regression model predicting total therapy time showed that a diagnosis of ASD before enrollment in the AS-ATN was a significant predictor. Additionally, 16.3% of participants were on ≥1 psychotropic medication. A univariate analysis and a multiple logistic model predicting psychotropic medication use showed site region as a significant predictor.

CONCLUSIONS:

Relatively few young children with ASD are receiving behavioral therapies or total therapy hours at the recommended intensity. There is regional variability in psychotropic medication use. Further research is needed to improve access to evidence-based treatments for young children with ASD.




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Patient- and Family-Centered Care in the Emergency Department for Children With Autism

BACKGROUND:

Emergency department (ED) care processes and environments impose unique challenges for children with autism spectrum disorder (ASD). The implementation of patient- and family-centered care (PFCC) emerges as a priority for optimizing ED care. In this article, as part of a larger study, we explore PFCC in the context of ASD. Our aims were to examine how elements of PFCC were experienced and applied relative to ED care for children with ASD.

METHODS:

Qualitative interviews were conducted with parents and ED service providers, drawing on a grounded theory approach. Interviews were audio recorded, transcribed verbatim, and analyzed by using established constant comparison methods. Data were reviewed to appraise the reported presence or absence of PFCC components.

RESULTS:

Fifty-three stakeholders (31 parents of children with ASD and 22 ED service providers) participated in interviews. Results revealed the value of PFCC in autism-based ED care. Helpful attributes of care were a person-centered approach, staff knowledge about ASD, consultation with parents, and a child-focused environment. Conversely, a lack of staff knowledge and/or experience in ASD, inattention to parent expertise, insufficient communication, insufficient family orientation to the ED, an inaccessible environment, insufficient support, a lack of resources, and system rigidities were identified to impede the experience of care.

CONCLUSIONS:

Findings amplify PFCC as integral to effectively serving children with ASD and their families in the ED. Resources that specifically nurture PFCC emerge as practice and program priorities.




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Mindfulness-Based Stress Reduction for Parents Implementing Early Intervention for Autism: An RCT

BACKGROUND AND OBJECTIVES:

Systems of care emphasize parent-delivered intervention for children with autism spectrum disorder (ASD). Meanwhile, multiple studies document psychological distress within these parents. This pilot longitudinal randomized controlled trial compared the parent-implemented Early Start Denver Model (P-ESDM) to P-ESDM plus mindfulness-based stress reduction (MBSR) for parents. We evaluated changes in parent functioning during active treatment and at follow-up.

METHODS:

Participants included children (<36 months old) with autism spectrum disorder and caregivers. Participants were randomly assigned to P-ESDM only (n = 31) or P-ESDM plus MBSR (n = 30). Data were collected at baseline, midtreatment, the end of treatment, and 1, 3, and 6 months posttreatment. Multilevel models with discontinuous slopes were used to test for group differences in outcome changes over time.

RESULTS:

Both groups improved during active treatment in all subdomains of parent stress (β = –1.42, –1.25, –0.92; P < 0.001), depressive symptoms, and anxiety symptoms (β = –0.62 and –0.78, respectively; P < 0.05). Parents who received MBSR had greater improvements than those receiving P-ESDM only in parental distress and parent-child dysfunctional interactions (β = –1.91 and –1.38, respectively; P < 0.01). Groups differed in change in mindfulness during treatment (β = 3.15; P < .05), with P-ESDM plus MBSR increasing and P-ESDM declining. Treatment group did not significantly predict change in depressive symptoms, anxiety symptoms, or life satisfaction. Differences emerged on the basis of parent sex, child age, and child behavior problems.

CONCLUSIONS:

Results suggest that manualized, low-intensity stress-reduction strategies may have long-term impacts on parent stress. Limitations and future directions are described.




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Parent Perceptions About Communicating With Providers Regarding Early Autism Concerns

BACKGROUND:

Long delays between parents’ initial concerns about their children’s development and a subsequent autism spectrum disorder (ASD) diagnosis are common. Although discussions between parents and providers about early ASD concerns can be difficult, they are critical for initiating early, specialized services. The principles of shared decision-making can facilitate these discussions. This qualitative study was designed to gain insights from parents of young children with ASD about their experiences communicating with primary care providers with the goal of identifying strategies for improving conversations and decision-making regarding the early detection of ASD.

METHODS:

Three 2-hour focus groups were conducted with 23 parents of children with ASD <8 years old. Qualitative analysis employed an iterative and systematic approach to identify key themes related to parents’ experiences.

RESULTS:

Eight themes related to communication about early ASD concerns emerged: characteristics of the child that caused parental concerns, the response of others when the parent brought up concerns, how concerns were brought up to the parent by others, parental responses when others mentioned concerns, information seeking, barriers to and facilitators of acting on concerns, and recommendations to providers. Parent responses suggest the need for increased use of shared decision-making strategies and areas for process improvements.

CONCLUSIONS:

Primary care providers can play a key role in helping parents with ASD concerns make decisions about how to move forward and pursue appropriate referrals. Strategies include responding promptly to parental concerns, helping them weigh options, and monitoring the family’s progress as they navigate the service delivery system.




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Families Experiences With Family Navigation Services in the Autism Treatment Network

BACKGROUND AND OBJECTIVES:

Families of children with autism spectrum disorder (ASD) often experience challenges navigating multiple systems to access services. Family navigation (FN) is a model to provide information and support to access appropriate services. Few studies have been used to examine FN’s effectiveness for families of children with ASD. This study used mixed methods to (1) characterize FN services received by a sample of families in the Autism Treatment Network; (2) examine change in parent-reported activation, family functioning, and caregiver strain; and (3) explore families’ experiences with FN services.

METHODS:

Family characteristics and parent outcomes including parent activation, family functioning, and caregiver strain were collected from 260 parents in the Autism Treatment Network. Descriptive statistics and linear mixed models were used for aims 1 and 2. A subsample of 27 families were interviewed about their experiences with FN services to address aim 3.

RESULTS:

Quantitative results for aims 1 and 2 revealed variability in FN services and improvement in parent activation and caregiver strain. Qualitative results revealed variability in family experiences on the basis of FN implementation differences (ie, how families were introduced to FN, service type, intensity, and timing) and whether they perceived improved skills and access to resources.

CONCLUSIONS:

Findings suggest FN adaptations occur across different health care delivery systems and may result in highly variable initial outcomes and family experiences. Timing of FN services and case management receipt may contribute to this variability for families of children with ASD.




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Screening Tools for Autism Spectrum Disorder in Primary Care: A Systematic Evidence Review

CONTEXT:

Recommendations conflict regarding universal application of formal screening instruments in primary care (PC) and PC-like settings for autism spectrum disorder (ASD).

OBJECTIVES:

We systematically reviewed evidence for universal screening of children for ASD in PC.

DATA SOURCES:

We searched Medline, PsychInfo, Educational Resources Informational Clearinghouse, and Cumulative Index of Nursing and Allied Health Literature.

STUDY SELECTION:

We included studies in which researchers report psychometric properties of screening tools in unselected populations across PC and PC-like settings.

DATA EXTRACTION:

At least 2 authors reviewed each study, extracted data, checked accuracy, and assigned quality ratings using predefined criteria.

RESULTS:

We found evidence for moderate to high positive predictive values for ASD screening tools to identify children aged 16 to 40 months and 1 study for ≥48 months in PC and PC-like settings. Limited evidence evaluating sensitivity, specificity, and negative predictive value of instruments was available. No studies directly evaluated the impact of screening on treatment or harm.

LIMITATIONS:

Potential limitations include publication bias, selective reporting within studies, and a constrained search.

CONCLUSIONS:

ASD screening tools can be used to accurately identify percentages of unselected populations of young children for ASD in PC and PC-like settings. The scope of challenges associated with establishing direct linkage suggests that clinical and policy groups will likely continue to guide screening practices. ASD is a common neurodevelopmental disorder associated with significant life span costs.1,2 Growing evidence supports functional gains and improved outcomes for young children receiving intensive intervention, so early identification on a population level is a pressing public health challenge.3,4




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Disparities in Service Use Among Children With Autism: A Systematic Review

CONTEXT:

Research reveals racial, ethnic, and socioeconomic disparities in autism diagnosis; there is limited information on potential disparities related to other dimensions of services.

OBJECTIVE:

We reviewed evidence related to disparities in service use, intervention effectiveness, and quality of care provided to children with autism by race, ethnicity, and/or socioeconomic status.

DATA SOURCES:

Medline, PsychInfo, Educational Resources Informational Clearinghouse, and the Cumulative Index to Nursing and Allied Health Literature were searched by using a combination of Medical Subject Headings terms and keywords related to autism, disparities, treatment, and services.

STUDY SELECTION:

Included studies addressed at least one key question and met eligibility criteria.

DATA EXTRACTION:

Two authors reviewed the titles and abstracts of articles and reviewed the full text of potentially relevant articles. Authors extracted information from articles that were deemed appropriate.

RESULTS:

Treatment disparities exist for access to care, referral frequency, number of service hours, and proportion of unmet service needs. Evidence revealed that racial and ethnic minority groups and children from low-income families have less access to acute care, specialized services, educational services, and community services compared with higher-income and white families. We found no studies in which differences in intervention effectiveness were examined. Several studies revealed disparities such that African American and Hispanic families and those from low-income households reported lower quality of care.

LIMITATIONS:

The body of literature on this topic is small; hence it served as a limitation to this review.

CONCLUSIONS:

The documented disparities in access and quality of care may further identify groups in need of outreach, care coordination, and/or other interventions.




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Family Engagement in the Autism Treatment and Learning Health Networks

Family involvement in the Autism Intervention Research Network on Physical Health, the Autism Treatment Network, and the Autism Learning Health Network, jointly the Autism Networks, has evolved and grown into a meaningful and robust collaboration between families, providers, and researchers. Family involvement at the center of the networks includes both local and national network-wide coproduction and contribution. Family involvement includes actively co-authoring research proposals for large grants, equal membership of network committees and workgroups, and formulating quality improvement pathways for local recruitment efforts and other network initiatives. Although families are involved in every aspect of network activity, families have been the driving force of specifically challenging the networks to concentrate research, education, and dissemination efforts around 3 pillar initiatives of addressing comorbidities of anxiety, attention-deficit/hyperactivity disorder, and irritability in autism during the networks’ upcoming funding cycle. The expansion of the networks’ Extension for Community Healthcare Outcomes program is an exciting network initiative that brings best practices in autism care to community providers. As equal hub members of each Extension for Community Healthcare Outcomes team, families ensure that participants are intimately cognizant of family perspectives and goals. Self-advocacy involvement in the networks is emerging, with plans for each site to have self-advocacy representation by the spring of 2020 and ultimately forming their own coproduction committee. The Autism Treatment Network, the Autism Intervention Research Network on Physical Health, and the Autism Learning Health Network continue to be trailblazing organizations in how families are involved in the growth of their networks, production of meaningful research, and dissemination of information to providers and families regarding emerging work in autism spectrum disorders.




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Improving Behavior Challenges and Quality of Life in the Autism Learning Health Network

OBJECTIVES:

To summarize baseline data and lessons learned from the Autism Learning Health Network, designed to improve care and outcomes for children with autism spectrum disorder (ASD). We describe challenging behaviors, co-occurring medical conditions, quality of life (QoL), receipt of recommended health services, and next steps.

METHODS:

A cross-sectional study of children 3 to 12 years old with ASD receiving care at 13 sites. Parent-reported characteristics of children with ASD were collected as outcome measures aligned with our network’s aims of reducing rates of challenging behaviors, improving QoL, and ensuring receipt of recommended health services. Parents completed a survey about behavioral challenges, co-occurring conditions, health services, and the Patient-Reported Outcomes Measurement Information System Global Health Measure and the Aberrant Behavior Checklist to assess QoL and behavior symptoms, respectively.

RESULTS:

Analysis included 530 children. Challenging behaviors were reported by the majority of parents (93%), frequently noting attention-deficit/hyperactivity disorder symptoms, irritability, and anxiety. Mean (SD) scores on the Aberrant Behavior Checklist hyperactivity and irritability subscales were 17.9 (10.5) and 13.5 (9.2), respectively. The Patient-Reported Outcomes Measurement Information System Global Health Measure total score of 23.6 (3.7) was lower than scores reported in a general pediatric population. Most children had received recommended well-child (94%) and dental (85%) care in the past 12 months.

CONCLUSIONS:

This baseline data (1) affirmed the focus on addressing challenging behaviors; (2) prioritized 3 behavior domains, that of attention-deficit/hyperactivity disorder, irritability, and anxiety; and (3) identified targets for reducing severity of behaviors and strategies to improve data collection.




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The Autism Treatment Network: Bringing Best Practices to All Children With Autism

The Autism Treatment Network and Autism Intervention Research Network on Physical Health were established in 2008 with goals of improving understanding of the medical aspects of autism spectrum disorders. Over the past decade, the combined network has conducted >2 dozen clinical studies, established clinical pathways for best practice, developed tool kits for professionals and families to support better care, and disseminated these works through numerous presentations at scientific meetings and publications in medical journals. As the joint network enters its second decade continuing this work, it is undergoing a transformation to increase these activities and accelerate their incorporation into clinical care at the primary care and specialty care levels. In this article, we describe the past accomplishments and present activities. We also outline planned undertakings such as the establishment of the Autism Learning Health Network, the increasing role of family members as co-producers of the work of the network, the growth of clinical trials activities with funding from foundations and industry, and expansion of work with primary care practices and autism specialty centers. We also discuss the challenges of supporting network activities and potential solutions to sustain the network.




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Maternal and Child Health Bureaus Autism Research Program

OBJECTIVES:

To provide an overview and quantitatively demonstrate the reach of the Health Resources and Services Administration’s Maternal and Child Health Bureau autism research program.

METHODS:

We reviewed program reports and internal data from 59 autism research grantees. The US federal Interagency Autism Coordinating Committee’s strategic plan questions were used as a framework to highlight the contributions of the autism research program in advancing the field.

RESULTS:

The autism research program grantees advance research in several ways. Grantees have strengthened the evidence for autism interventions by conducting 89 studies at 79 distinct research sites. A total of 212 708 participants have enrolled in autism research program studies and 361 researchers have contributed to furthering autism research. The program addresses topics that align with the majority of the Interagency Autism Coordinating Committee’s priority topic areas, including advancements in treatments and interventions, services and supports, and identifying risk factors. Grantee products include 387 peer-reviewed publications, 19 tools, and 13 practice guidelines for improving care and intervention practices.

CONCLUSIONS:

The autism research program has contributed to medical advances in research, leveraged innovative training platforms to provide specialized training, and provided access to health services through research-based screening and diagnostic procedures. Autism research program studies have contributed to the development of evidence-based practice guidelines, informed policy guidelines, and quality improvement efforts to bolster advancements in the field. Although disparities still exist, the Health Resources and Services Administration’s Maternal and Child Health Bureau can reduce gaps in screening and diagnosis by targeting interventions to underserved populations including minority and rural communities.




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Red Cell Transfusion and Thrombotic Risk in Children




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Perspectives on Informed Consent Practices for Minimal-Risk Research Involving Foster Youth




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The History of the Personal Belief Exemption




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Chronic Thrombocytopenia as the Initial Manifestation of STIM1-Related Disorders

Pediatric thrombocytopenia has a wide differential diagnosis, and recently, genetic testing to identify its etiology has become more common. We present a case of a 16-year-old boy with a history of chronic moderate thrombocytopenia, who later developed constitutional symptoms and bilateral hand edema with cold exposure. Laboratory evaluation revealed evidence both of inflammation and elevated muscle enzymes. These abnormalities persisted over months. His thrombocytopenia was determined to be immune mediated. Imaging revealed lymphadenopathy and asplenia, and a muscle biopsy was consistent with tubular aggregate myopathy. Ophthalmology evaluation noted photosensitivity, pupillary miosis, and iris hypoplasia. Genetic testing demonstrated a pathogenic variant in STIM1 consistent with autosomal dominant Stormorken syndrome. Our case is novel because of the overlap of phenotypes ascribed to both gain-of-function and loss-of-function pathogenic variants in STIM1, thereby blurring the distinctions between these previously described syndromes. Pediatricians should consider checking muscle enzymes when patients present with thrombocytopenia and arthralgia, myalgia, and/or muscle weakness. Our case highlights the importance of both multidisciplinary care and genetic testing in cases of chronic unexplained thrombocytopenia. By understanding the underlying genetic mechanism to a patient’s thrombocytopenia, providers are better equipped to make more precise medical management recommendations.




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Current Issues in the Treatment of Acne Vulgaris

Acne vulgaris is an extraordinarily common skin condition in adolescents. The mainstays of acne treatment have remained largely unchanged over recent years. In the context of increasing antibiotic resistance worldwide, there is a global movement away from antibiotic monotherapy toward their more restrictive use. Classically reserved for nodulocystic acne, isotretinoin has become the drug of choice by dermatologists for moderate to severe acne. Given the virtually ubiquitous nature of acne in teenagers, there remains an appreciable need for novel therapies. In this article, we will cover the currently used acne treatments, evaluate the issues and data supporting their use, explore the issues of compliance and the mental health implications of acne care, and recommend directions for the field of acne management in adolescents in the years ahead.




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Diagnosis and Management of Polycystic Ovary Syndrome in Adolescents

Polycystic ovary syndrome (PCOS) is a common female reproductive disorder that often manifests during adolescence and is associated with disruptions in health-related quality of life. Prompt evaluation and clinical support after diagnosis may prevent associated complications and optimize overall health management. This article incorporates the most recent evidence and consensus guidelines to provide an updated review of the pathogenesis, clinical presentation, diagnostic evaluation, and management strategies for adolescents with this complex condition. We will review the recent international guidelines on PCOS; because the diagnosis of PCOS remains controversial, management of this condition is inconsistent. In 2019, PCOS remains a common, yet neglected, condition, in part, because of the lack of agreement around both diagnosis and management.




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Sleep Disorders in Adolescents

Chronic sleep deprivation is a common, treatable condition among adolescents. Growing literature supports a myriad consequences that impact overall health, behavior, mood, and academic performance in this vulnerable age group during a time when there are rapid changes in physical development and emotional regulation. This article reviews the epidemiology and health effects of sleep deprivation in adolescents as well as common disorders leading to sleep loss and evidence to support treatment. Although a variety of important sleep disorders may disrupt quality of sleep in adolescents, such as obstructive sleep apnea, restless leg syndrome, and narcolepsy, this article will focus on common disorders that affect the quantity of sleep, such as poor sleep hygiene, circadian rhythm disorders, and insomnia.




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Management of Opioid Misuse and Opioid Use Disorders Among Youth

In response to the growing impact of the current opioid public health crisis in the United States on adolescents and young adults, pediatricians have an expanding role in identifying opioid use early, preventing escalation of risky use, reducing opioid-related harms, and delivering effective therapies. Research and expert consensus suggest the use of brief interventions focused on reducing risks associated with ongoing opioid use and using motivational interviewing strategies to engage youth in treatment. Because fatal opioid overdose remains a major cause of opioid-related mortality among youth, delivering overdose education as part of any visit in which a youth endorses opioid use is one evidence-based strategy to decrease the burden of opioid-related mortality. For youth that are injecting opioids, safe injection practices and linkage to needle or syringe exchanges should be considered to reduce complications from injection drug use. It is crucial that youth be offered treatment at the time of diagnosis of an opioid use disorder (OUD), including medications, behavioral interventions, and/or referral to mutual support groups. The 2 medications commonly used for office-based OUD treatment in adolescents are extended-release naltrexone (opioid antagonist) and buprenorphine (partial opioid agonist), although there is a significant treatment gap in prescribing these medications to youth, especially adolescents <18 years of age. Addiction is a pediatric disease that pediatricians and adolescent medicine physicians are uniquely poised to manage, given their expertise in longitudinal, preventive, and family- and patient-centered care. Growing evidence supports the need for integration of OUD treatment into primary care.




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Addressing Key Issues in Adolescent Health Care




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Light shines on Irish horse fair

An outreach team learns the value of sharing their personal testimonies and what a little light can do to a community.




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Immersed in ministry life

OM Ireland's Immersion team reflects on their first month as interns in churches around Ireland.




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Donkey teaches Irish children true meaning of Christmas

The Creative Arts team perform their Christmas show for school children all over Ireland in the course of three weeks.




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The invisible woman

Walvis Bay, Namibia :: Local women attend a challenging discipleship event on board Logos Hope




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Life and light on the Kuiseb

Two native Namibians stand as the only Christians in their community




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OM Australia buys new mission base

On 12 December, OM Australia settled on their first-ever permanent base after renting for over 20 years.




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From Afghanistan to Australia

A former Afghan fighter discovers Jesus Christ in the Qur’an.




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Ministry restarts, sees fruit

OM Pakistan restarted ministry in one province to reach the least reached by forming small discipleship groups and training local believers to be disciples of Christ.




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Sport & discipleship - Igor's story

Sport creates a platform for evangelism and discipleship in Ukraine.




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Kids kneel to accept Christ at camp

After having some difficulty with the campers and teen leaders, OMer Stephen explains the significance of the cross and following Jesus—many respond positively.




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Visiting orphans

The OM team in Odessa, Ukraine, regularly visits orphanages in the province, bringing love and the good news to children.




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‘Now is the time for the Church to shine’

An OM Ukraine leader reports that amidst ongoing conflict, deep changes are taking place that OM Ukraine expects will lead to spiritual harvest.




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Hope for children with autism

OM Ukraine Odessa invites children with autism and their families to a two-day summer camp.




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New Soccer and sports ministry in Odessa, Ukraine

Through the "Lighthouse" soccer team, Maksim Shlikov is reaching out to young orphanage graduates looking for meaning and hope.




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Odessa orphans: his heart's home

Long-term follower of Jesus, Nikolay, stepped out in faith to help orphans in Ukraine, and partners with OM in this ministry to children.




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Visitors from far away

International short-term volunteers reach out to an elderly Jewish couple and share comfort from God's Word.




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As long as it is Day

A volunteer from Hong Kong shares about her experience on a short-term trip, visiting orphans and elderly Jewish people.




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Burkas and saris in western Panama

A former student of OM Panama brings the world to her small church in western Panama.




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Class is in session

The OM Panama International Intensive School of Missions re-opens!




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God is in control

A woman recommits her life to God as a result of His provision through the team and a visit they hadn’t even planned to do.