This report shows commissioners and providers of care how to embed the principles of the Mental Capacity Act (MCA) into care and support planning across the board.

Social Care Institute for Excellence (SCIE) Report 71 from SCIE Roundtable held on 12 February 2015. The aim of the Social Care Institute for Excellence (SCIE) roundtable discussion was to identify, celebrate, support and learn from community-led activity.

Social Care Institute for Excellence (SCIE) Report 73 from SCIE roundtable discussion held on 26 March 2015. This report considers the potential of technology to transform how health and social care services are delivered.

CCPS is the Coalition of Care and Support Providers in Scotland. Their mission is to identify, represent, promote and safeguard the interests of third sector and not-for-profit social care and support providers in Scotland, so that they can maximise the impact they have on meeting social need.

The Dementia Services Development Centre (DSDC) draws on research and practice, from across the world, to provide a comprehensive, up-to-date resource on all aspects of dementia.

The core purpose of the Scottish Centre for Crime and Justice Research (SCCJR) is to carry out high quality, internationally recognised research in relation to crime and criminal justice.

SCLD brings together some of the most respected practitioners and thinkers from across the learning disability sector who work alongside people who have learning disabilities and their families and carers.The team at SCLD is focused on delivering real change through influencing policy, identifying and sharing evidence and good practice and challenging public attitudes. SCLD aims to be a knowledge hub – offering support, information and new ideas about learning disability in Scotland.

BASW is the largest professional association for social work in the UK, with offices in England, Northern Ireland, Scotland and Wales. BASW promote the best possible social work services for all people who may need them, while also securing the well being of social workers.

British Institute of Learning Disabilities services help develop the organisations who provide services, and the people who give support.

Capability Scotland campaigns with, and provides education, employment and care services for disabled children and adults across Scotland.

Chest, Heart and Stroke Scotland aims to improve the quality of life for people in Scotland affected by chest, heart and stroke illness, through medical research, influencing public policy, advice and information and support in the community.

The Scottish Council for Voluntary Organisations (SCVO) is the membership organisation for Scotland's charities, voluntary organisations and social enterprises.

Evaluation report for the inter-authority learning exchange between Shetland Islands, Falkirk and Glasgow Councils throughcare and aftercare teams. In February 2014 a member of the Throughcare and Aftercare team from Shetland, spent two weeks in each host authority as a means of developing and sharing practice, experience and learning. The report describes the planning process, in-situ experience, and post-exchange learning of participants, it also report highlights the positive learning outcomes and benefits achieved for all participating local authorities. The report identifies ideas for future applications of such a learning and practice exchange model to improve practice for looked after young people and care leavers.

This publication presents information on support to carers and in particular respite care services provided or purchased by local authorities in Scotland over the financial years 2007 / 2008 to 2014 / 2015.

As part of the implementation of the Equal Partners in Care (EPiC) Highland Carer’s Strategy 2014-2017 it was agreed to undertake a review of respite for Adult Carers of Adults (aged 16+). Independent consultants were commissioned by NHS Highland through Connecting Carers to undertake this work. There are four groups of people – totalling an estimated 200 people - with whom conversations have taken place during the review: Carers and staff from carer support organisations – more than 75 carers have given their views Health and social care workforce – we have met with just over 50 people who have given their views and shared our initial findings with more than 60 others Respite providers – we have met with staff from 15 organisations that are providers of respite Those staff responsible for overseeing the commissioning, planning and administration of respite.

The Short Breaks Fund helping to make breaks better and brighter for unpaid carers and cared-for people in Scotland. Launched in 2010 for one year, the fund has now been running for five years and has proved to be a lifeline for many carers. During the past five years the Scottish Government, through Shared Cared Scotland has distributed 12,547,409 to 697 projects to deliver innovative, tailor made breaks to groups and individuals.

In 2006 Mencap produced a comprehensive review of short break provision. Now, 10 years on, they are revisiting the support available for family carers to see whether recent policy initiatives and investment have delivered the much-needed change. A total of 264 family carers responded to their survey on short breaks provision and experiences of caring. They also sent Freedom of Information requests to all 152 local authorities in England that provide social care services. This report looks at short breaks provision in a climate of cuts to central and local government budgets. It examines the extent to which these cuts have impacted on the lives of people with a learning disability and their family carers. It also looks at the state of affairs for family carers of children and young people across the full spectrum of learning disability; from people with mild and moderate learning disabilities, to people with severe and profound disabilities.

ARCH, the National Respite Network and Resource Center in the United States of America identified that evidence-based research on respite care has, to large extent, been lacking. Across ages, needs and settings, respite is based upon the premise that providing caregivers periodic relief from daily, ongoing caregiving responsibilities will directly benefit them in terms of their physical health, immediate and long-term psychological health, and social-emotional relationships with family members. These benefits are assumed to result in secondary benefits for care receivers and even larger societal benefits in the form of cost benefits or improved employee productivity. Some research studies point to the merits of these assumptions. However, evidence-based research supporting this premise - or going beyond it to demonstrate how to best provide respite care that results in maximum benefits - has not been available. This report presents the findings of an expert panel composed of academics, researchers, service providers, advocates, policymakers and administrators representing a range of age groups, disabilities and professional disciplines. Over a period of 18 months the panel explored the current status of respite research, proposed strategies to overcome barriers to research, and developed a plan to encourage rigorous research in key areas.

The 10th international short break conference took place in Edinburgh from 13 to 15 September 2016. This conference report explores the barriers experienced in accessing short breaks and how these have been overcome.

This End of Project Report describes an innovative Transition to Work Programme for young people with autistic spectrum diagnoses and is the result of a pilot programme developed by Lothian Autistic Society (LAS) and Scottish Outdoor Education Centres (SOEC) and made possible through funding from Scottish Natural Heritage (SNH). The pilot had the twin aims of developing employability skills and exploring the therapeutic value of the outdoors. 

The ‘Dementia: More Than Just Memory Loss’ report, was published in 2016, and set out some of the key issues affecting people with dementia in Wales, in particular: • A widespread lack of knowledge and understanding of dementia amongst professionals and the wider public. • A lack of flexibility to effectively meet the needs of people living with dementia and their carers. • A lack of co-operation between services creates unnecessary difficulties and barriers for people living with dementia and their carers. The authors of the report called for a range of actions to address this, and there has been some progress, however, despite a range of changes across society at a policy, practice and community level, there is still a long way to go to transform services and drive the cultural change needed to effectively meet the needs of people affected by dementia.  The author of this report has consistently focused on the importance of meaningful outcomes for people with dementia and their carers, to ensure that their lives have value, meaning and purpose. This is fundamental to ‘Rethinking Respite’ and to delivering the Welsh Government’s vision of ‘a dementia friendly nation that recognises the rights of people with dementia to feel valued and to live as independently as possible in their communities as outlined in the new Dementia Action Plan for Wales. 

This research compares the different approaches to supporting carers of people with dementia across the UK, US and beyond.  Carried out by the University of Birmingham, this work explores the role and experience of carers in different national contexts, highlighting good practice examples and making policy and practice recommendations. Unsurprisingly perhaps, the report highlights just how much we have in common with other countries in trying to make available effective, personalised supports against a backdrop of increased demand and diminishing resource.  Interestingly, the report explores the language of ‘respite’ which it suggests has ‘negative overtones’ and proposes a more creative approache to service provision is needed.

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