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Medical Foods for Inborn Errors of Metabolism: History, Current Status, and Critical Need

Successful intervention for inborn errors of metabolism (IEMs) is a triumph of modern medicine. For many of these conditions, medical foods are the cornerstone of therapy and the only effective interventions preventing disability or death. Medical foods are designed for patients with limited or impaired capacity to ingest, digest, absorb, or metabolize ordinary foods or nutrients, whereby dietary management cannot be achieved by modification of the normal diet alone. In the United States today, access to medical foods is not ensured for many individuals who are affected despite their proven efficacy in the treatment of IEMs, their universal use as the mainstay of IEM management, the endorsement of their use by professional medical organizations, and the obvious desire of families for effective care. Medical foods are not sufficiently covered by many health insurance plans in the United States and, without insurance coverage, many families cannot afford their high cost. In this review, we outline the history of medical foods, define their medical necessity, discuss the barriers to access and reimbursement resulting from the regulatory status of medical foods, and summarize previous efforts to improve access. The Advisory Committee on Heritable Disorders in Newborns and Children asserts that it is time to provide stable and affordable access to the effective management required for optimal outcomes through the life span of patients affected with IEMs. Medical foods as defined by the US Food and Drug Administration should be covered as required medical benefits for persons of all ages diagnosed with an IEM.




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Supercapacitor promises storage, high power and fast charging

A new supercapacitor based on manganese oxide could combine the storage capacity of batteries with the high power and fast charging of other supercapacitors, according to researchers at Penn State and two universities in China.




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Bernie Sanders' Record on Testing and No Child Left Behind: A Brief History

The Democratic presidential candidate likes to highlight his vote against the No Child Left Behind Act in 2001, although his record on the issue of high-stakes standardized testing isn't black and white.




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Hottest PC Components and Storage at CES 2020: AMD, and SSDs, Still Rising

A 64-core/128-thread CPU. A new challenger in laptop processors. A feisty new fighter in midrange graphics. These three things have three letters in common. Plus: SSDs take on stunning new capacities, speeds, and looks.





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Hope in the midst of the storm

OM and partners work to bring hope to the Rohingya refugees, even with monsoon rains threatening temporary housing in the camps.




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Slovenia make history with Spain futsal success

Slovenia's 1-0 first-leg defeat of Spain ended a string of streaks held by the European champions, including 27 straight wins and unbeaten runs of more than a decade.




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Education Funding Bill Progresses in House After School Safety Money Restored

The House appropriations committee voted Wednesday to advance a bill providing a slight funding increase for the U.S. Department of Education, bringing overall funding to about $71 billion.




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Briefly Stated: Stories You May Have Missed

Education Week catches you up on the week gone by with a thoughtful look at recent news in K-12 education.




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Two New Homeowners Join Restoring Central Dover Initiative

DOVER — Two Delaware families are becoming homeowners in central Dover with the purchase of single-family homes constructed by NCALL as part of the Restoring Central Dover initiative. NCALL, the Delaware State Housing Authority, elected officials and other partners and supporters celebrated the project today, part of a multi-pronged approach to homeownership and economic development […]



  • Delaware State Housing Authority

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Teachers Told Me Their Stories of Sexual Assault and Harassment—and Why They Keep Silent

Even in this extraordinary #MeToo era, ordinary women who've experienced harassment or assault at work are often reluctant to share their stories publicly. Arianna Prothero found that to be just as true as she reported on sexual harassment and assaults in schools and other K-12 workplaces.




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Fin24.com | Private investors more cagey than experts

Economists and market experts may be trumpeting an economic and stock market recovery, but private investors and business owners are less convinced, a survey shows.




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Stories from the Silk Road

Participants serving in the annual Central Asian outreach experience God in new ways when they leave their comfort zones.




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Briefly Stated: Stories You May Have Missed

A breakdown of high-profile news stories you may have missed during the week.




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Storytime, Meet Number Play: Early Math in the Home Matters for Later Skills

Preschool-age children who frequently play number-related games at home show better math skills and growth by the end of kindergarten, finds a new study in the journal Child Development.




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AG Jennings, national coalition reach largest data breach settlement in history

$600 million settlement over 2017 Equifax data breach includes up to $425 million in consumer restitution Attorney General Kathy Jennings Monday announced a settlement with Equifax as the result of an investigation into the largest-ever breach of consumer data. Under the terms of the settlement, Equifax agreed to provide a single Consumer Restitution Fund of […]



  • Department of Justice
  • Department of Justice Press Releases
  • News



stor

WEDNESDAY: Governor Carney Hosting Discussions on Arts, Historic Preservation

WILMINGTON, Del. – On Wednesday, November 1, Governor John Carney will host roundtable discussions with leaders in Delaware’s arts & culture, and historic preservation communities. The discussions are part of Governor Carney’s efforts to showcase Delaware as an attractive home for businesses and their employees. Follow Governor Carney’s discussions using the hashtag #OptionsInDE, and learn […]



  • Department of State
  • Governor John Carney
  • Office of the Governor

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Delaware Division of Historical and Cultural Affairs to sponsor 17 special programs during the 2017 winter-holiday season

Eight holiday-themed activities among the programs to be offered.




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Archaeological Discovery Writes New Chapter in Delaware’s Early Colonial History

An archaeological study years in the making has revealed a wealth of new information about some of Delaware’s earliest colonial settlers and shed new light on what life would have been like in the region three centuries ago.




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Delaware Division of Historical and Cultural Affairs museums closed on Dec. 24, 25 and 31, 2017; and Jan. 1, 2018

Museums closed Christmas Eve, Christmas Day, New Year’s Eve and New Year’s Day.




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Delaware Division of Historical and Cultural Affairs to sponsor seven free programs during January 2018

Highlights include activities celebrating Martin Luther King, Jr. Day, and programs on E.R. Johnson’s yacht the Caroline and buccaneers in the Delaware Bay.




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African American History Month programs among 18 special events at the museums of the State of Delaware during February 2018

Highlights include programs on African-American life at the John Dickinson Plantation in the 18th century, the evolution of black recorded music and African-American archaeology in Delaware.




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National Women’s History Month events among 16 special programs at the museums of the State of Delaware during March 2018

Highlights include programs on women's suffrage, Harriet Tubman and the female vocalists of the Victor Talking Machine Company.





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Delaware Division of Historical and Cultural Affairs to sponsor 16 special events during April 2018

Highlights include Buena Vista’s First Annual Spring Open House, The Old State House's Coffee-Hour Lecture Series and programs on Delaware's Dutch heritage.




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Delaware Division of Historical and Cultural Affairs to replace roof of Academy building in New Castle

Improvements slated to begin in the spring of 2018.




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Delaware Division of Historical and Cultural Affairs to sponsor seven special events during May 2018

Highlights include Dover Days programs, A Day in Old New Castle and “A Sailor’s Life for Me,” the Zwaanendael Museum’s 7th Annual Maritime Celebration.




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Delaware Division of Historical and Cultural Affairs to sponsor 11 special events during June 2018

Programs on Delaware heroes of the War of 1812, dyeing fabrics 18th-century style, and Separation Day in New Castle to be featured.




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Governor Carney Signs Angel Investor Job Creation and Innovation Act

New law establishes a refundable tax credit for qualified investors in Delaware small businesses NEWARK, Del. – Governor John Carney on Thursday signed into law House Bill 170, the Angel Investor Job Creation and Innovation Act, at the Delaware Technology Park at the University of Delaware’s STAR Campus. The Angel Investor Job Creation and Innovation […]




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State Historic Preservation Office Employee, African American History Expert Makes National Trust 40-Under-40 List

Carlton Hall, a cultural preservation specialist and historian with the Delaware State Historic Preservation Office (SHPO), earned a place on the inaugural “40 Under 40” list recently unveiled by the National Trust for Historic Preservation.




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Fort Christina Offers a Historical Destination This Summer

Partner site of the First State National Historical Park to host summer 2018 events





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Delaware Senate passes concurrent resolution recognizing the Division of Historical and Cultural Affairs’ accreditation by the American Alliance of Museums

Accreditation is the highest recognition afforded to museums in the United States.




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“An Immigrant Story: Crossing the Atlantic in a 17th Century Sailing Ship” at the New Castle Court House Museum

Program will explore what life would be like for a two-month crossing of the Atlantic Ocean from Europe to the New World.





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Delaware Division of Historical and Cultural Affairs to sponsor 21 special events during September 2018

Native-American programming, Chautauqua shows and surviving the London Blitz among activities to be presented.




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Delaware releases historic preservation plan for 2018–2022

Working to preserve Delaware’s heritage for the future, the plan outlines six broad goals for the next five years.




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Delaware Division of Historical and Cultural Affairs to sponsor 14 special events during October 2018

Early 1900s music education, the life of Delaware patriot Caesar Rodney and walking tours of St. Peter’s cemetery in Lewes among topics to be explored.




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“Queenstown and the Early Colonial Delmarva: An Archaeological and Historical Symposium” at Delaware’s New Castle Court House Museum on Oct. 13, 2018

The event will include scholarly presentations on My Lord’s Gift, a 17th century archaeological site in Queenstown, Md.; and the Coleman Farm, Reedy Island and Fort Casimir sites in Delaware.




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Delaware Division of Historical and Cultural Affairs to sponsor 11 special events during November 2018

Changes to American society in the early 20th century, grave sites of notable New Castle veterans, and candle-making among topics to be explored.




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Delaware Angel Investor Tax Credit Applications Now Available

Refundable tax credit to encourage job creation, innovation WILMINGTON, Del. – Qualified investors and high-tech small businesses can now make use of Delaware’s newest program aimed at encouraging job creation and innovation. The Delaware Division of Small Business began Thursday accepting certification applications for the Angel Investor Tax Credit (AITC) at www.business.delaware.gov/incentives. “We are excited […]




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Delaware Division of Historical and Cultural Affairs to sponsor 15 special programs during the 2018 winter-holiday season

Ten holiday-themed activities among the programs to be offered.




stor

Delaware Division of Historical and Cultural Affairs to sponsor seven special events during January 2019

Highlights include activities celebrating Martin Luther King, Jr. Day, early jazz and the Avery’s Rest archaeological site.




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African American History Month programs among 13 special events at State of Delaware museums in February

Highlights include programs on the Underground Railroad, black recording artists and record labels from the early 20th century, and First African Baptist Church cemeteries in Philadelphia.




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Women’s History Month events among special programs at the museums of the State of Delaware in March 2019

Activities honor and celebrate women's lives and historic achievements.




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Delaware Division of Historical and Cultural Affairs to sponsor 14 special events during April 2019

Highlights include programs on the artist who created "His Master's Voice," the bombardment of Lewes and a festival at Fort Christina.




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Delaware Division of Historical and Cultural Affairs to sponsor five special events during May 2019

Dover Days, A Day in Old New Castle and the Zwaanendael Maritime Festival among programs to be offered.




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Delaware Division of Historical and Cultural Affairs to sponsor nine special events during June 2019

Separation Day, Black Music Month Celebration and a historic preservation symposium among programs to be offered.