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Families Experiences With Family Navigation Services in the Autism Treatment Network

BACKGROUND AND OBJECTIVES:

Families of children with autism spectrum disorder (ASD) often experience challenges navigating multiple systems to access services. Family navigation (FN) is a model to provide information and support to access appropriate services. Few studies have been used to examine FN’s effectiveness for families of children with ASD. This study used mixed methods to (1) characterize FN services received by a sample of families in the Autism Treatment Network; (2) examine change in parent-reported activation, family functioning, and caregiver strain; and (3) explore families’ experiences with FN services.

METHODS:

Family characteristics and parent outcomes including parent activation, family functioning, and caregiver strain were collected from 260 parents in the Autism Treatment Network. Descriptive statistics and linear mixed models were used for aims 1 and 2. A subsample of 27 families were interviewed about their experiences with FN services to address aim 3.

RESULTS:

Quantitative results for aims 1 and 2 revealed variability in FN services and improvement in parent activation and caregiver strain. Qualitative results revealed variability in family experiences on the basis of FN implementation differences (ie, how families were introduced to FN, service type, intensity, and timing) and whether they perceived improved skills and access to resources.

CONCLUSIONS:

Findings suggest FN adaptations occur across different health care delivery systems and may result in highly variable initial outcomes and family experiences. Timing of FN services and case management receipt may contribute to this variability for families of children with ASD.




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Improving Behavior Challenges and Quality of Life in the Autism Learning Health Network

OBJECTIVES:

To summarize baseline data and lessons learned from the Autism Learning Health Network, designed to improve care and outcomes for children with autism spectrum disorder (ASD). We describe challenging behaviors, co-occurring medical conditions, quality of life (QoL), receipt of recommended health services, and next steps.

METHODS:

A cross-sectional study of children 3 to 12 years old with ASD receiving care at 13 sites. Parent-reported characteristics of children with ASD were collected as outcome measures aligned with our network’s aims of reducing rates of challenging behaviors, improving QoL, and ensuring receipt of recommended health services. Parents completed a survey about behavioral challenges, co-occurring conditions, health services, and the Patient-Reported Outcomes Measurement Information System Global Health Measure and the Aberrant Behavior Checklist to assess QoL and behavior symptoms, respectively.

RESULTS:

Analysis included 530 children. Challenging behaviors were reported by the majority of parents (93%), frequently noting attention-deficit/hyperactivity disorder symptoms, irritability, and anxiety. Mean (SD) scores on the Aberrant Behavior Checklist hyperactivity and irritability subscales were 17.9 (10.5) and 13.5 (9.2), respectively. The Patient-Reported Outcomes Measurement Information System Global Health Measure total score of 23.6 (3.7) was lower than scores reported in a general pediatric population. Most children had received recommended well-child (94%) and dental (85%) care in the past 12 months.

CONCLUSIONS:

This baseline data (1) affirmed the focus on addressing challenging behaviors; (2) prioritized 3 behavior domains, that of attention-deficit/hyperactivity disorder, irritability, and anxiety; and (3) identified targets for reducing severity of behaviors and strategies to improve data collection.




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Participants have a plan but rely on God to act

OM Ireland's biggest outreach of the year teaches participants to commit their ways to Him and trust Him to act.




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A voice for those who have none

“The climb has taken me far beyond the mountain,” says Canadian Freedom Climber Denise Heppner, who knows that helping even one person makes a difference.




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‘I still have goose bumps’

No challenge is too big for God: “His provision gave me goose bumps,” shared Audrey, from Switzerland, about her journey to OM Panama’s Mission Extreme.




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Young, achingly hip and social media savvy: welcome to the world of Scotland's fashion influencers

Founded by Wendy H Gilmour in 2011, Thankfifi began as a fashion blog and has since grown to cover lifestyle, travel and interiors.




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Fin24.com | MONEY CLINIC: Help! I'm 35 with no retirement savings plan

A Fin24 user is looking to start a retirement savings plan as it does not form part of company benefits, he would have to pay out of pocket.




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Fin24.com | MONEY CLINIC: Is it better to settle debt before saving?

A Fin24 user asks whether saving is better when debt is paid off or not.




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Fin24.com | MONEY CLINIC: How can I invest my R1.2m savings without eroding my capital?

A Fin24 set to retire this year is looking to invest his R1.2m savings in order to receive a monthly payout.




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Let's have lifetime bans for gobby cinema and theatre goers

"I'M hungry."




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Scottish independence: Coronavirus is a blow to Indyref2 and changes the Scottish political landscape

IT is a truth universally acknowledged – at least by its advocates – that all things inexorably advance the cause of independence.




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Coronavirus: Ryanair expects up to 3,000 jobs to be lost

Ryanair has said it expects up to 3,000 jobs to be lost as part of a restructuring of the airline.




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As Belgravia and The English game starts on TV, Barry Didcock on the enduring appeal of frocks on the box

IF ever we needed to indulge in a bout of collective escapism, if only for 60 minutes on a Sunday night, then that time is now. Thankfully ITV has just the thing – Belgravia, the latest big budget costume drama from Downton Abbey creator Julian Fellowes and a series that positively ripples with dimples, quiffs, honey-coloured chiffon frocks, eye-popping millinery and glamorous uniforms.




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Have you ever seen the beautiful Georgian script?

OM EAST responds to the need for Christian books in the Georgian language.




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"I have come from a faraway country"

Thirteen participants in a weeklong outreach recently interacted with refugees, supporting OM’s refugee work in Linz.




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'Finally we have found a place'

“It is wonderful and we are very grateful to God that we can live here,” Javid said. “Finally we have found a place where we can live our faith in Jesus in peace."




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LTA announce £20m support package amid coronavirus pandemic

THE LTA has today announced a multi-million pound package of additional funding and measures to support those involved in tennis in Britain through the impact of the ongoing COVID-19 crisis.




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Andy Murray sends heartfelt message and donation to NHS workers amid coronavirus crisis

SIR Andy Murray has sent a heartfelt message to NHS staff for their heroic work during the coronavirus crisis.




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Andy Murray signs up for virtual Madrid tennis tournament amid coronavirus crisis

ANDY MURRAY will swap a tennis racket for a games controller when he takes part in a virtual Madrid Open later this month.




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Life on ice: How Glasgow Clan have rallied to prepare for post-shutdown

MAY is normally a busy month behind the scenes for Gareth Chalmers and the ongoing uncertainty around sport hasn’t changed that a huge amount.




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Thrown a curveball: Gus Mackay on navigating Scottish cricket through Covid-19 crisis

GUS MACKAY was full of good intentions when he agreed to become Cricket Scotland’s new chief executive last October.




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Drastic decline in passenger numbers at Tegel and Schönefeld in March 2020 / Impacts of the corona pandemic have become dramatically worse

Berlin’s airports are recording a drastic slump in passenger numbers. In March, a decline in passengers of 64.7 percent was recorded at Tegel and Schönefeld for the whole month. However, the number of passengers has continued to fall significantly over ...




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Donald Trump says coronavirus vaccine will be developed ‘by the end of this year’

US President Donald Trump has told a town hall meeting that he thinks a coronavirus vaccine will be developed “by the end of this year”.




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Coronavirus: Lockdown measures eased for millions

While millions of people have taken advantage of easing coronavirus lockdowns to enjoy the outdoors, some of the world’s most populous countries have reported worrying new peaks in infections.




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Coronavirus: Countries divided over lockdown

Regional and political divisions have emerged in many nations over how fast to lift coronavirus lockdowns as worries about economic devastation collide with fears of a second wave of deaths.




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Coronavirus: New cases in China and South Korea

China and South Korea both reported more coronavirus infections yesterday after reopening economies damaged by devastating outbreaks.




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New coronavirus cases in China and South Korea as world lockdowns ease

China and South Korea both reported more coronavirus infections Friday after reopening economies damaged by devastating outbreaks.




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Bravo, Butch Stewart; you di man!

Dear Editor,I might as well just say it out because it's the truth: Butch Stewart is a rare gift to Jamaica.The Jamaica Observer editorial yesterday captures it better than I could, 'Butch Stewart — the gift that keeps on giving'.




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Feliz Navidad!

OM teams in Costa Rica and El Salvador take Christmas to approximately 2,000 children during the run up to Christmas.




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Coronavirus Scotland: Celebrity hairstylist Taylor Ferguson gives his top tips to keep your locks looking good

WHEN we eventually emerge from lockdown the first thing most people will want to do is hug their nearest and dearest, but for some they will be running to their hair stylist to sort out the unruly mass of top of their head.




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Coronavirus in Scotland: Scottish Government advisor backs lockdown exit that lifts restrictions for majority but shields most vulnerable

RESEARCHERS have called for a two-track approach to easing lockdown which would strengthen protection for the most vulnerable but relax restrictions for the majority of the population.




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Coronavirus in Scotland: IVF treatment to restart 'as quickly as possible'

NICOLA Sturgeon hopes to reopen IVF clinics “as quickly as possible” to stop the closure having a “devastating” impact on families’ lives during the pandemic.




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Coronavirus in Scotland: If lockdown unravels, should we ask the sick, elderly or obese to stay at home instead?

THE people of Scotland have been offered a “light at the end of the tunnel” in the form of various potential relaxations to lockdown - but warned they will only get there if they double down on their compliance.




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Coronavirus: Professor raises 'big problem' with Nicola Sturgeon's test, trace, isolate strategy

A PUBLIC health professor has warned that the Scottish Government’s strategy to escape the lockdown will encounter “a big problem” unless test results can be provided quicker.




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Italy’s coronavirus death toll rises above 30,000

Italy has become the first European Union country to record more than 30,000 coronavirus deaths.




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Fresh from Scottish farms, frozen to keep in all the goodness - why Farmfoods is still the nation's favourite

Farmfoods, a Scottish family business, has served the nation for over 60 years - and has never faltered in selling the finest farm  produce the country has to offer.




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Coronavirus in Scotland: Edinburgh's economy set for £300m hit after festivals axed

SCOTLAND'S capital is coming to terms with the "heart-breaking" news that its summer festivals will not go ahead this year - costing the city hundreds of millions of pounds.




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Coronavirus: Edinburgh Airbnb flats help solve homelessness crisis

HOUSING bosses in Scotland’s capital have finally moved all homeless families with children out of unsuitable B&Bs after Airbnb properties and hotel rooms were left empty by the coronavirus lockdown.




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Stay home, switch and save with Utility Saving Expert

Staying home can save you money. You won't be spending your cash on your commute, on eating out or going to the pub whilst in lockdown, but that's not all. There are other ways you can be savvy with your spending and find ways to save.




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Coronavirus: Scottish businesses which ignore social distancing face police action

NICOLA Sturgeon said she does not expect police to be “routinely patrolling office blocks” as sweeping new enforcement powers come into force to include workplaces flouting social distancing rules.




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Coronavirus: Scots told to give up cigarettes and reduce alcohol from lockdown diet

SCOTS have been urged to give up smoking and cut down their alcohol consumption in a bid to reduce “complications linked to conroavirus”.




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Baker’s Delight, Glasgow. Ron Mackenna's home deliveries guide – 'Brilliant food. Travels well'

Baker’s Delight




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Joanna Blythman: The many exciting food initiatives that have emerged through the Coronavirus crisis

The ingenuity of Scotland’s independent food sector, and its determination to keep feeding us in these testing circumstances, is remarkable. Restaurants and cafés have gone down the takeaway route, small artisan suppliers who lost overnight all their catering customers have rapidly reconfigured their business around home delivery. Farmers who previously struggled to attract supermarket shoppers have never been so busy. Farmer’s markets have adapted to sell delivered or collected vegetable b




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Coronavirus in Scotland: Giovanna Eusebi shares memories of cooking with her grandmother in lockdown recipe series

LEARNING from the hands of her grandmother in Italy, it was perhaps always going to be Giovanna Eusebi's destiny that she would go on to create culinary masterpieces of her own one day.




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Cook your way through the coronavirus crisis with Marc Mazoyer

MARC Mazoyer is getting ready for the week ahead. He’s made soup, and a loaf of bread, and roasted a chicken and he’s thinking about what he’ll do with the food over the next few days. Some of the chicken can go into a dahl, and maybe a risotto, and he might make some quesadillas with it too. And the leftovers can go into a caesar salad. This is how Marc keeps physically well. But it’s how he keeps mentally well too.




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Gardening: Nine hedgehog garden hazards and how to avoid them

Strimmers, bonfires and netting are among garden hazards that can harm hedgehogs, so take precautions during Hedgehog Awareness Week and beyond.




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Gardening with Dave Allan: Grow your own sunny delights

During the present crisis, many more of us are turning to Grow Your Own. This lets us enjoy much fresher and tastier veg than from a weekly shop, especially if that languishes in the fridge for days. And we won’t be relying on imports that could become less accessible.




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'I have nothing, except Jesus'

A family of 10 in Cambodia experience God's love through the provision of a new home.




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Energy-harnessing wave machine to undergo sea tests

AN ENERGY-HARNESSING wave machine is set to begin sea trials later this year.




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Coronavirus: seven video games to play during lockdown

Someone is mortally wounded, shot to bits by a stormtrooper, hacked to pieces by a zombie, legs crushed by a Sergio Ramos tackle, or crippled when their go-kart careered into a cartoon tree.